About us
MND Victoria
Who we are
MND Victoria started in 1981 (initially as the Motor Neurone Society of Victoria) with a meeting of a small group of people with MND and their families, health/welfare staff, and other concerned people. We now provide support across Victoria, Tasmania and the border area of NSW.
Our governance
We are governed by a State Council of twelve MND Victoria members; six must be people with MND, carers or close associates. We are managed by a Chief Executive Officer. Professional staff work to provide services to people with MND, their families, community workers and health professionals. A dedicated group of volunteers support staff to provide services.
We have regular contact with similar organisations in other states through the Motor Neurone Disease Association of Australia (MNDA) and with other countries via the International Alliance of ALS/MND Associations.
Aboriginal and Torres Strait Islander Peoples
MND Victoria is committed to providing culturally safe care for Aboriginal and Torres Strait Islander Peoples. We are actively working on a Reconciliation Action Plan and welcome feedback from Aboriginal and Torres Strait Islander organisations and communities. Our Advisors/Support Coordinators work to support your choices and wishes, respecting your beliefs, values and your community.
What we do
We provide support services at no cost to people living with MND/Kennedy's Disease and their family.
Our funding
Most of our funding comes from fundraising and the NDIS. We also receive grants from the State Government Department of Health and the Commonwealth Home Support Program. We raise funds through donations, raffles, merchandise, bequests, support from service clubs and from philanthropic trusts and company sponsorship.
Donations are tax-deductible.
