Support > Support for carers

Family Carers Information Toolkit

Family and friends play an important role in caring for their loved one with motor neurone disease (MND).

Whilst the focus is often on the person with MND, we recognise that you might need extra support and information to help you through this time. The aim of this Information Toolkit is to give family carers a single location to find information or to direct them to resources designed to help address their needs.

Understanding MND

Understanding motor neurone disease (MND) is an important first step when receiving a diagnosis.

Useful contacts

Your MND Advisor and Support Coordinator has a wealth of information available to share with you, and there are other useful contacts as well.

Supporting children and younger members of the family

Every member of the family will respond to the diagnosis of MND differently.

The feelings and worries you may have

A diagnosis of MND can bring up worries and fears, and it can help to talk about these, so they don’t start to feel impossible to deal with.

Supports for personal household care

There are a number of ways we can support you at this time, and programs we can connect you to for funding support as well.

Financial, legal and work issues

Caring for a loved one with a life limiting illness can create a range of financial, legal and work issues that you may not have had to manage before.

Care outside the home

Caring for someone 24 hours a day, seven days a week can be exhausting. It’s completely normal to need regular breaks from caring, including overnight breaks.