2026 State Election Priorities 

1. People living with MND require a responsive assistive technology service and specialised equipment library to meet their rapidly changing needs. 
2. 55% of Victorians living with MND rely on the aged care system, where delays and funding gaps restrict access to essential equipment. 
3. MND Victoria’s existing in-house service addresses this gap by purchasing, maintaining, delivering, and retrieving equipment, but faces a funding shortfall of $935,000.  
4. Victorian government funding will secure this vital service for people living with MND across Victoria.

1. Making MND a notifiable disease and establishing a state-wide registry will address critical data gaps, enabling researchers to investigate potential contributors, risk factors and patterns of MND.  

2. Better data will accelerate research, support the development of new therapies and bring us closer to understanding and ultimately curing MND.

1. In MND, every month matters. Access to specialist multidisciplinary care is associated with improved outcomes and longer survival compared with non-specialist care.  
2. MND clinics provide best-practice care, yet Victoria’s existing MND clinics are concentrated in Melbourne and Barwon, leaving many regional Victorians with limited access to specialist MND services.  
3. Establishing a regional MND clinic in North-East Victoria would reduce travel barriers and improve equitable access to specialist multidisciplinary care closer to home.  
4. Investing in regional MND care will support earlier intervention, better coordination of care and improved quality of life, while reducing pressure on acute health services.

1. Around 20% of people living with MND carry a gene variant linked to the disease, including many with no known family history. Specialist genetic counselling enables people to make informed decisions about genetic testing, understand the implications of results and consider future care options—including accessing treatment and research opportunities. 
2. While Medicare-funded genomic testing is available for MND, access to specialist genetic counselling remains limited.  
3. Targeted community fundraising has temporarily enabled MND Victoria to pilot a specialist genetic counselling service. Victorian Government investment of $250,000 annually would secure ongoing statewide access to this essential service.

We’re actively engaging with Victorian politicians, and raising awareness in the wider public about our key asks and why they matter to people living with MND.  

To do this well, we need real voices and experiences of life with MND. With your permission, we’ll get your story in front of politicians and/or the wider public.  

If you’re interested in sharing your story to help us advocate better, please contact Jess at community@mnd.org.au

Most candidates will be out in the community, either appearing at your door or appearing at local events with the intention of finding out what’s important to you.  
 
If you don’t want to go speak to them in person, calling up their office or sending them a letter (through the post or by email) are great ways to make sure they note down your concerns. When contacting them, make sure you explain how MND has touched your life and tell them that you want them to engage with MND Victoria’s election platform.  

Find out which electorates you live in by heading to the Victorian Electoral Commission's website here. From there, you can Google the candidates running in your electorate.

If you use social media (partlicularly Facebook, Instagram, or LinkedIn), you can let your connections know that advocating for MND during this election period is important to you.  

The easiest way is to share one of MND Victoria’s election platform posts:

Share our post on Facebook

Share our Instagram post

Share our post on LinkedIn

When you press the share button, you can add a message about why these asks are important to you.