Support groups

Programs take on a variety of forms and offer participants the opportunity to meet and share experiences with others in a similar situation, give and receive strategies and tips, learn about living well with MND and receive support for loss and grief.  The length and format of the groups varies based on the needs of the group participants.

Sharing Knowledge and Expertise to Face Everyday Challenges

These topic-focused sessions offer an opportunity for people living with MND and their families to learn from experts in MND, including professionals and others with lived experience, and develop knowledge and strategies in response to common challenges.

Each group runs for approximately 1 hour (may be longer for in-person sessions), once a month, via Zoom or in person. Each month will have a different topic focus.

Connected and Supported

These facilitated peer-support groups provide a relaxed opportunity for peer connection and to share experiences amongst people living with MND and their carers. 

2025 sessions will be held quarterly, and will be online. All are welcome.

 There are also some in-person locations (region-specific) - please speak with your MND Advisor or the Education team, if you are interested in a region-specific in-person group.

The group is open to anyone living with PLS, Kennedy’s disease or who have had MND for over 5 years, and/or their carers or support person. It provides an opportunity to make connections, ask questions and share experiences and information about living with a slower progressing condition. 

Meetings are hosted every 3 months over Zoom. Please contact your MND Advisor/Support Coordinator to discuss this further or email Carmela at cquimbo@mnd.org.au

For more information or to join one of our MND Exchange sessions or MND Relate Groups 2025, please contact us at info@mnd.org.au or call us on 1800 777 175 or register on our events page.

MND Carers Australia

An online support group, independent of MND Victoria, for Australian MND carers to discuss issues they face. To join, go to Facebook and search for: “MND Carers Australia” or click the button below.

MND Angels Australia

An online support group for people in Australia whose partners have died from MND. MND Angels is independent from MND Victoria. To join, go to Facebook and search for: “MND Angels Australia”, or click the button below.

MND Genies

About 10% of people diagnosed with MND have a familial form of the disease. MND Genies is a peer-led support community exclusively for people who carry a genetic mutation associated with MND. The group offers connection, shared lived experience, reliable information and emotional support for those navigating a genetic result, family implications and the complexities of familial MND.

Click on the link below to request to join the group. You will be asked to confirm that you have tested positive for an MND related gene mutation, and you will be asked what gene mutation you have tested positive for.