Support > Family Carers Information Toolkit
Understanding MND
Understanding motor neurone disease (MND) is an important first step when someone you know receives a diagnosis.
As a family/friend or carer it’s important to be well informed about MND and to seek out advice and support from the outset.
MND Victoria is a non-for-profit organisation that provides care and support to Victorians and Tasmanians living with MND. MND Victoria provides a range of services to support people with MND, their carers, family, friends and health professionals. These services are provided through the Support Services team at no direct cost to the person with MND.
MND Connect provides resources, information and service linkage for people living with MND, their carers and family, as well as the health professionals and services providers who support them to live well.
Experiences
Nancy's experience
Nancy felt overwhelmed when her husband was first diagnosed with motor neurone disease. They received a lot of information about his condition and what to expect. They were so caught up in learning of the diagnosis it was hard for her to think about what was ahead. Nancy has adjusted to their life, living with MND. She would like more information about what to expect to prepare herself. She also wants to share this information with close family and friends so they will be able to support her.
John's experience
John worries about what his future looks like. He’s aware that MND affects everyone differently. His MND Advisor supports John and provides information and education about MND. His Advisor also advocates for him.
