Lived Experience Advisory Committee 

Our Commitment

MND Victoria values the knowledge, insight and expertise that comes from lived experience. We encourage applications from people of all backgrounds and are committed to providing an inclusive, respectful and accessible environment for all participants. 

Your voice can help shape better support, stronger advocacy and improved outcomes for people living with MND and their families.

Help shape the future of support for people living with MND and their families.

MND Victoria is seeking expressions of interest from people with lived experience of motor neurone disease (MND) to join our new Lived Experience Advisory Committee. The Committee has been established to ensure the voices of people living with MND, carers and families help inform our services, advocacy, programs and future priorities. 

We are looking for:

• People living with MND
• Current or former carers
• Family members of people affected by MND
• People from diverse backgrounds and locations across Victoria
  
  

What's involved?

• Attend approximately four meetings per year
• Share feedback and ideas to help improve services and support
• Contribute to discussions about community needs, priorities and opportunities

Meetings will be accessible and offered online and/or in a hybrid format.

Why join?

This is an opportunity to:

• Have your voice heard
• Help improve services for others affected by MND
• Influence future programs and advocacy priorities
• Contribute to meaningful change for the MND community
  
  

How to apply:

Please send:

• Your name and contact details
• A brief summary of your connection to MND
• A short statement about why you would like to join the Committee

Applications close: 10th August 2026

For more information or to apply, contact info@mnd.org.au

Your experience matters. Help us ensure the voice of the MND community is at the heart of everything we do.