Who are we?
MND Victoria started in 1981 (initially as the Motor Neurone Society of Victoria) with a meeting of a small group of people with MND and their families, health/welfare staff, and other concerned people. We now provide support across Victoria, Tasmania and the border area of NSW.
We are governed by a State Council of twelve MND Victoria members; six must be people with MND, carers or close associates. We are managed by a Chief Executive Officer. Professional staff work to provide services to people with MND, their families, community workers and health professionals. A dedicated group of volunteers support staff to provide services.
We have regular contact with similar organisations in other states through the Motor Neurone Disease Association of Australia (MNDA) and with other countries via the International Alliance of ALS/MND Associations.
What do we do?
We are the only non-for-profit orgainsation that provides the direct care and support to Victorians living with MND.
We provide support to anyone affected by MND
When someone is diagnosed with MND or Kennedy's Disease, their loved ones, extended families, friends, workmates and service providers are all affected.
We provide support services at no cost to the person living with MND/Kennedy's Disease and their family. People can choose from a range of services including:
- MND Guide/Support Coordinator (helps with managing symptoms and finding support, has expert knowledge of MND and local services)
- Equipment Service (equipment loan, repair, pick-up and drop-off)
- Carer/Family Support
- Support Groups-connecting with others
- Information and Education Sessions
- Volunteer Support Services (including hand and foot massage, social visits/phonecalls, support to use iPads, writing your life story)
- MNDNews newsletter
Find out more about our support services here.
Most people with MND/Kennedy's Disease receive care at home. MND Victoria helps people to be as independent as possible and to have the best possible quality of life. Where people live in aged care facilities or other support accommodation, our Keeping Connected team continue to provide support.
Membership of MND Victoria is free for people with MND, and $20 per year for other people.
If you are under the age of 65 and have been diagnosed with MND, you need to register with the NDIS (National Disability Insurance Scheme) to access funding for services from MND Victoria and other services. If you need help to register, MND Victoria can assist.
Aboriginal and Torres Strait Islander Peoples
MND Victoria is committed to providing culturally safe care for Aboriginal and Torres Strait Islander Peoples. We are actively working on a Reconciliation Action Plan and welcome feedback from Aboriginal and Torres Strait Islander organisations and communities. Our guides/support coordinators work to support your choices and wishes, respecting your beliefs, values and your community.
Services for people who speak languages other than English
MND Victoria can arrange an interpreter to come to your home or to talk on the phone. Please tell us about any cultural or religious needs that are important to you.
Register for our services
If you would like to talk or need help registering, call 1800 777 175 or email firstname.lastname@example.org.
Through donations and fundraising, MND Victoria supports research into the causes, cure and management of MND directly and via Motor Neurone Disease Research Australia (MNDRA).
Most of our funding comes from fundraising and the NDIS. We also receive grants from the State Government Department of Health and the Commonwealth Home Support Program. We raise funds through donations, raffles, merchandise, bequests, support from service clubs and from philanthropic trusts and company sponsorship. Donations are tax-deductible.