Dialog Box

Support Groups

MND Victoria offers a range of support group programs to support people with MND and their carers, family members and friends.

Programs take on a variety of forms and offer participants the opportunity to meet and share experiences with others in a similar situation, give and receive strategies and tips, learn about living well with MND and receive support for loss and grief.  The length and format of the groups varies based on the needs of the group participants.

Living with MND

Living With MND is a group program that is designed for people with MND and their carers/ a support person. Participants have the opportunity to share knowledge and discuss topics relevant to living with MND. The format of the program varies to suit the needs of participants and may include readings, group discussion, video presentations and guest speakers.

2023 Program: Living with MND is planned to run in February, May, August, and November.

For more information or to join the Living with MND Program, please contact us at info@mnd.org.au or call us on 1800 777 175

Living with Slow Progressing Conditions

This group is open to anyone living with slow progressing MND or Kennedy’s disease, their carers/ a support person. It provides an opportunity to make connections, ask questions and share experiences and information about living with a slower progressing condition. 

Meetings are hosted every 3 months over Zoom. Please contact your MND Advisor/Support Coordinator to discuss this further or email Carmela at cquimbo@mnd.org.au

Kitchen Table Conversations for Carers

Kitchen Table Conversations provide a safe space for carers to ask questions, share experiences, learn from each other and support each other. Hosted by Andrea Salmon, Carer Project Coordinator at MND Victoria along with Lynette and Karl, past carers, these conversations are run monthly via Zoom on the:

  • 1st Friday of the month at 2:00 pm, and
  • 3rd Thursday of the month at 7:30 pm

Register to attend by emailing info@mnd.org.au or call our office on 03 9830 2122.

National Youth Hub for Young Carers 

For younger people who are connected to and caring for someone with MND

The National Youth Hub is a space for young carers to chat, share, and connect about their experiences with providing care for someone with Motor Neurone Disease. .

Young carers play a big part in the journey of someone diagnosed with MND, and they need a robust support network

The MND National Youth Hub provides information, support services and tools for young carers ages 5 to 24 years old.

Read More 

Operated by MND New South Wales 

Help create your Youth Hub:

If you are 12 to 16 years old and you want to help create the Youth Hub for your age group then email us at nationalyouthhub@mndnsw.org.au to join our wonderful team of creators!

For more information on the National Youth Hub, please contact us at info@mnd.org.au or call us on 1800 777 175

Where can I find further information?

If you would like more information about any of the group programs or would like to register interest or provide feedback, ideas or suggestions, please contact our Information Team.

Call 1800 777 175Email Us