Motor Neurone Disease (MND) is an uncommon disease and often people may not have heard of the condition prior to being diagnosed.
Motor neurone disease (MND) is the name for a group of conditions involving the nerve cells that control voluntary movements. MND is a progressive, life-limiting condition.
There is no cure for MND yet, but there are treatments and supports that improve quality of life and may help people to live longer.
In MND the nerve cells (neurones) controlling the muscles that enable us to move around, speak, breathe and swallow, fail to work normally. As the nerve cells degenerate, muscles gradually weaken and waste. The patterns of weakness and speed of progression varies from person to person, and depending on the type of MND a person has.
Different types of MND:
- Amyotrophic Lateral Sclerosis (ALS) - 65% of all cases
- Progressive Bulbar Palsy (PBP) - 25% of all cases
- Progressive Muscular Atrophy (flail limb) - 9% of all cases
- Primary Lateral Sclerosis - 1% of all cases
- MND with frontal temporal dementia - 5-15% of all cases (often the symptoms of dementia commence some years before the symptoms of MND)
Motor Neurone Disease is also known in different parts of the world as:
- Amyotrophic Lateral Sclerosis (ALS), named after the most common type
- Lou Gehrig’s Disease
- Maladie de Charcot (Charcot’s disease)
Where can I find further information?
Visit MND Australia for reliable, up to date information:
- MND: symptoms, causes, familial MND, types of MND, diagnostic tests and research
- Services and support
- Managing symptoms
- Talking with family and friends
- Tips for looking after yourself (physical activity, maintaining weight, caring for your mental health, sex and intimacy)
Find downloadable factsheets here and at MND Connect
Feel free to contact our friendly team by calling (03) 9830 2122 or emailing firstname.lastname@example.org for specific information kits.
MND Victoria host regular information sessions for people who have been diagnosed and their family and friends. We provide a safe space for people to ask questions about their MND diagnosis and available supports. Scroll through our events to find out about upcoming information sessions.
How does MND Victoria help?
MND Victoria works with people living with MND and their carers/support persons.
- Support, advice and service coordination based on a wide understanding of the issues associated with each stage of the disease
- Information resources
- Living with MND / peer support groups
- Carer support
Find out about the range of MND Support Services available from MND Victoria.
Evidence shows that the best possible treatment for MND is the support of a specialised multidisciplinary team. Multidisciplinary care improves quality of life and may increase survival.
There are many medical and allied health professionals that provide support to people living with MND.