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Why MiND? …Why not stick with MND? - well it’s just a rather simple play on words
I refer to my condition as ‘My Neurological Disorder’ - of course I know quite well that the medical term is Motor Neurone Disease (MND). This term was put to me as if pronouncing a death sentence and because I like to own my life and respond to it positively, I am not prepared to simply to go away and die quietly as the medical profession has effectively told me to do.
So why put this site up?
Firstly let make it quite clear, I am not selling anything, nor do I wish to profit in any way from this site. I like to think that people with MND are special; I would rather live life to the fullest, live happily, be aware, live without fear, make my life worthy and fulfilling, simply look at beautiful things, feel beautiful, enjoy every moment, love others and live a peaceful life.
Life can be beautiful and a wonderful journey, as I am now discovering.
Yes I have MND, but I am still human and want to be accepted and not stared at like a freak
I want to help my friends and family who also suffer by doing things to keep their spirits up and give them some insight as to how they can help.
There are many more positive and uplifting things to learn and know about this ridiculous dis-ease than the horror images and scary stories lots of people insist on telling you.
…Some people have said “-’ oh you’re just in denial”’” - well they’re wrong; I face my reality every moment of every day and I am creating a way of living my life, my way.
I would like to change the perception of what a MND sufferer is - what he or she looks like, thinks or needs or that it is just an old person’s disease. The tragedy is that it can happen to anyone, anytime at any age.
There is no reason to deprive our bodies of love, beauty, creativity and inspiration.